Month: April 2015

Joint Essential Tremor Support Group, June 6, 2015

Essential Tremor (ET) affects 7 million Americans. It is often confused with Parkinson’s disease. If you, a family member, or a friend have ET, you are invited to attend a free meeting sponsored by HopeNET, an all-volunteer, non-profit organization.

This joint meeting of all the HopeNET support groups in Virginia & Maryland will be held on June 6 from 10am until noon at Holy Cross Hospital, 1500 Forest Glen Rd., Silver Spring, Md. 20910.

Our guest speaker will be Dr. Stan Anderson, a neurosurgeon at Johns Hopkins Hospital. His presentation will be on Essential Tremor & the circuitry of the brain and will occur less than a month after the conference at NIH on Essential Tremor in which this topic of ET & the brain circuitry will be one of the primary discussion points.

Information about HopeNET may be found at www.theHopeNET.org. You will need to register for this. To do so, please call Peter Muller at 703-543-8131 or one of the contact people at each group – Doris Mapes, Lisa Gannon, Mary Thomas, Barbara McCarthy or Prudy Bradley

Essential Tremor Conference GoFundMe Campaign

It is important that HopeNET continue to play its advocacy role not only with the public but also with the medical community. HopeNET needs money to fund its role in the conference. We are asking for $4500.

Essential Tremor (ET) is the most common tremor in the world. It affects 7 million Americans. Yet very few people know what it is. It is commonly confused with Parkinson’s – another movement disorder. The lack of awareness has a direct impact on the amount of money being spent on research for the condition. In fact, not one medication has been developed to date to treat Essential Tremor.

HopeNET played an instrumental role in getting NIH to host a conference on Essential Tremor. It will be held May 11-12 at the NIH campus. It will bring together the key researchers on ET from across the country as well as some international experts. I expect positive developments resulting from the conference. In conversations I have had with members of HopeNET’s medical advisory board, they too share my optimism.

Peter Muller, Executive Director