HopeNET has been working with Ziky Ababiya, the Legislative Assistant for Health Care for Senator Chris Van Hollen of Maryland. We have had many phone conversations, email exchanges, and meetings. Ababiya has been very helpful. In the process, she has been responsive, informative and attentive to our needs – during very trying times.
Senator Van Hollen wants to implement a bill that would direct the CDC to surveil all neurological disorders to be more informed regarding each. This is a very important issue to Essential Tremor as there is practically no epidemiology for it. Without more information about ET, it makes it very difficult to achieve better treatments and ultimately a cure.
The following is a statement from Senator Van Hollen’s office regarding the bill.Senator on Funding