{"id":1024,"date":"2012-12-04T11:07:31","date_gmt":"2012-12-04T16:07:31","guid":{"rendered":"http:\/\/thehopenet.org\/blog\/?p=92"},"modified":"2020-08-27T10:10:15","modified_gmt":"2020-08-27T14:10:15","slug":"alzheimer-parkinson-association-opens-doors-to-essential-tremor","status":"publish","type":"post","link":"https:\/\/thehopenet.org\/blog2\/alzheimer-parkinson-association-opens-doors-to-essential-tremor\/","title":{"rendered":"Alzheimer & Parkinson Association opens doors to Essential Tremor"},"content":{"rendered":"

Below is an article that appeared in the Vero’s Voice, a Vero Beach, Florida newspaper<\/p>\n

Alzheimer & Parkinson Association opens doors to Essential Tremor
\nBy Joan Marie Barringer, MEd, CHT<\/p>\n

Last year, I phoned the Alzheimer & Parkinson Association of Indian River County<\/a> and asked if I could start an Essential Tremor Group there.\u00a0 After explaining the need for help for those individuals who have been diagnosed with the tremor disorder that affects more than 10 million Americans, the answer was affirmative.\u00a0 I explained Essential Tremor (ET) and my personal story.<\/p>\n

When I was a child I was bullied.\u00a0 Kids made fun of me even though I was smart.\u00a0 Remembering comments like, “You are so nervous,” and, “Why can’t you stand on your own two feet?” would bring tears to my eyes.\u00a0 My friend, Bob Votruba of One Million Acts of Kindness<\/a>,\u00a0 knows what I mean as he speaks to teens about the pain of bullying and the need to be kind.\u00a0 I felt so alone back then.\u00a0 Speaking in front of the class was terrifying.\u00a0 Rhett Palmer asked during a radio interview,\u00a0 “Didn’t it give you compassion?”\u00a0 I had to answer, “Yes.”\u00a0 “You aren’t shaking much now,” he mentioned.\u00a0 I had to admit that he was right. My body, mind and spirit remedies have enhanced my quality of life.\u00a0 I am now content as a motivational speaker.<\/p>\n

I have my days.\u00a0 That is my need for the support group.\u00a0 I have a Master’s in Agency Counseling and I am working on a PhD in Holistic Life Counseling.\u00a0 I help a variety of individuals now, but ET is close to home.\u00a0 I started the first ET support group for the International Essential Tremor Foundation (IETF) in Washington, DC at Georgetown University Hospital.\u00a0 When I go to a doctor’s office, writing can still be a challenge for me.\u00a0 I ask for help.\u00a0 I teach others to open up and tell people about their tremor.\u00a0 So many keep it a secret and have expressed feelings of shame.\u00a0 In the DSM, the book of diagnoses, it states that those with tremor can have “social phobia”.<\/p>\n

Many are misdiagnosed.\u00a0 One twelve-year-old boy was diagnosed as bi-polar and was prescribed Lithium, which has tremor as a side effect and exacerbated his condition.\u00a0 His parents considered putting him up for adoption.\u00a0 In my research, I noticed that The Washington Post had reported that Katharine Hepburn died of Parkinson’s, but she had recently spoken to a few thousand in California about her ET.\u00a0 These misconceptions are all due to lack of information.<\/p>\n

I am on the board of HopeNET<\/a>, headed by CEO Peter Muller, a non-profit organization comprised of physicians, clinical researchers, counselors and nurses.\u00a0 NET stands for “No More ET”.\u00a0 Organizations are continuing to work with doctors and speak to school children about ET.\u00a0 I went to Congress with the IETF, not to ask for money, but we asked for a month of ET Awareness.\u00a0 The month of March became official in 2010.\u00a0 We are now attempting to spread the word.\u00a0 Unlike what some people, even professionals believe, ET can be be disabling with emotional ramifications.\u00a0 Individuals with ET can have difficulty maintaining jobs or functioning in general.\u00a0 This condition has not gotten the support or financial backing it deserves.\u00a0 Research for the only medication for ET, 1-Octanol, was discontinued due to lack of funding.\u00a0 In the magazines of the American Academy of Neurology, ET isn’t mentioned on the list of neurological conditions, even though it is the most common movement disorder.<\/p>\n

The good news is that Peggy Cunningham, Executive Director of the Alzheimer & Parkinson Association, is hosting the first Essential Tremor Awareness Day in Vero at the Northern Trust Bank on February 7, 2013.\u00a0 Neurologists specializing in ET will speak.\u00a0 Call the Association at 772-563-0505 for reservations.\u00a0 The ongoing ET Support Group meets on the first and third Wednesday of the month at 2:00 pm.<\/p>\n

Thank you to Vicki Suplizio, Vice-Chair of the Alzheimer & Parkinson Association of Indian River County, for your support.<\/p>\n","protected":false},"excerpt":{"rendered":"

Below is an article that appeared in the Vero’s Voice, a Vero Beach, Florida newspaper Alzheimer & Parkinson Association opens doors to Essential Tremor By Joan Marie Barringer, MEd, CHT Last year, I phoned the Alzheimer & Parkinson Association of Indian River County and asked if I could start an Essential Tremor Group there.\u00a0 After … Read more…<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[6,23,24,26,30],"tags":[],"yoast_head":"\nAlzheimer & Parkinson Association opens doors to Essential Tremor - HopeNet<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/thehopenet.org\/blog2\/alzheimer-parkinson-association-opens-doors-to-essential-tremor\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Alzheimer & Parkinson Association opens doors to Essential Tremor - HopeNet\" \/>\n<meta property=\"og:description\" content=\"Below is an article that appeared in the Vero’s Voice, a Vero Beach, Florida newspaper Alzheimer & Parkinson Association opens doors to Essential Tremor By Joan Marie Barringer, MEd, CHT Last year, I phoned the Alzheimer & Parkinson Association of Indian River County and asked if I could start an Essential Tremor Group there.\u00a0 After ... 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