The St. Luke’s Support Group met on Saturday, January 5th at 10:30 AM, when Dr. Mark Hallett spoke to us via video conferencing.\u00a0 Dr. Hallett gave us a good description of essential tremor confirming the idea that it is probably a group of disorders.\u00a0 It affects different people in different ways as do the treatments. We learned that there is a very real difference in how the medications and treatments affect (or don’t affect) each individual.<\/p>\n
Due to the nature of the condition, there is no reason to give up and not try another treatment just because the first does not work.<\/p>\n
Dr. Hallett also told us of some of the research that is being done, including their ongoing attempts to get a pharmaceutical firm to make a prescription drug of Octanoic Acid.<\/p>\n
He answered many questions and very graciously agreed to speak to us again in the future.<\/p>\n
My own personal note at the end of the meeting was to remind everyone that the purpose of HopeNET is two-fold: To create awareness of ET and to fund research.<\/p>\n
Despite snow flurries, the meeting was well attended.<\/p>\n
Mary Fitzpatrick
\nSt. Louis Support Group Leader<\/p>\n","protected":false},"excerpt":{"rendered":"