{"id":540,"date":"2016-06-14T20:42:43","date_gmt":"2016-06-15T00:42:43","guid":{"rendered":"http:\/\/thehopenet.org\/blog\/?p=540"},"modified":"2016-06-14T20:42:43","modified_gmt":"2016-06-15T00:42:43","slug":"congress-helping-essential-tremor","status":"publish","type":"post","link":"https:\/\/thehopenet.org\/blog2\/congress-helping-essential-tremor\/","title":{"rendered":"Congress Helping Essential Tremor"},"content":{"rendered":"

\"Congress<\/a>HopeNET is continuing to contact members of Congress to achieve specific goals regarding ET. More than a year and a half ago, a member of one of our support groups said that she had had her yearly Medicare examination. She said that there had been no mention of ET. She felt that there should have been because falls are the largest cause of injuries among the elderly. I asked Dr. Fatta Nahab\u00a0to draft a letter – from a Congressman to the Director of CMS asking that attention be given to ET and falls. We then met with a Legislative Assistant (LA)\u00a0for Healthcare for a Congressman in January 2015. We explained\u00a0that we were requesting the Congressman’s help and gave\u00a0her the draft.\u00a0<\/span><\/p>\n

Nothing materialized then so we revisited the issue in December 2015. We met with the LA for a different Congressman, Maryland Congressman Chris Van Hollen. We had a very good meeting with her. During the conversation, the “Essential\u00a0Knowledge Gaps in the field of Essential Tremor” conference held\u00a0at NIH in May 2015 came up. I explained that a major issue at the conference was the need for a better understanding of Essential Tremor. After discussing our request with Congressman Van Hollen, she called me back\u00a0to say that they wanted to shift the direction of the letter to asking NIH to focus on getting a better understanding of\u00a0ET.<\/span><\/p>\n

There were delays in sending the letter, primarily because the Congressman was in a sometimes bitter\u00a0race to win the Democratic nomination\u00a0for the Senate. In late April, he won the primary. Given Maryland politics, he will be the next Senator.<\/span><\/p>\n

Dr.Claudia Testa\u00a0provided invaluable assistance in that she\u00a0provided the LA with a draft and then\u00a0worked with her to come up with the final version.<\/span><\/p>\n

Please find attached the letter that was sent: \u00a0\u00a0 <\/span><\/p>\n

Link to PDF of Essential Tremor Letter to NIH June 2016<\/a>
\n<\/span><\/p>\n

Peter<\/p>\n","protected":false},"excerpt":{"rendered":"

HopeNET is continuing to contact members of Congress to achieve specific goals regarding ET. More than a year and a half ago, a member of one of our support groups said that she had had her yearly Medicare examination. She said that there had been no mention of ET. She felt that there should have … Read more…<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[26],"tags":[],"yoast_head":"\nCongress Helping Essential Tremor - HopeNet<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/thehopenet.org\/blog2\/congress-helping-essential-tremor\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Congress Helping Essential Tremor - HopeNet\" \/>\n<meta property=\"og:description\" content=\"HopeNET is continuing to contact members of Congress to achieve specific goals regarding ET. More than a year and a half ago, a member of one of our support groups said that she had had her yearly Medicare examination. 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