On January 18, I had lunch in Rome, Italy with Alfonso Fasano, MD, PhD. He is currently at the Institute of Neurology at the Catholic University of the Sacred Heart in Rome. He is a movement disorder specialist who worked for a time with Dr Gunther Deuschl. Dr Deuschl is currently President of the Movement Disorder Society and is one of the foremost experts on Essential Tremor.
Alfonso & I discussed better ways to disseminate the results of research being done on Essential Tremor – to those who have it. He saw the benefit of doing so and enthusiastically wanted to help. He had some interesting observations. The principle one was that a number of people who have been told they have Essential Tremor, have Dystonia instead. They were misdiagnosed.
Dr Fasano is moving to Toronto within the month to continue his work there. Kathleen Welker of Tremor Action Network & I look forward to staying in touch with him while he is there.
Peter Muller
Executive Director
I just found your website and haven’t read all of it yet. I just wanted to say that I have severe essential tremors. I am 71 and I had the Deep Brain Stimulation surgery. It has helped a lot, but not as much as I would like. Because I have a severe case they have not been able at this time to find the right settings for me. I go back every week or two to try new settings. Eventually we will find the best for me. I would definitely have the surgery again and I will try anything they come up with.
It would be nice to have a support group here. What does it take to get one started?
Rosemary Bales
Fairfield, Ohio