Here is a presentation about COGNET: A New ET Research Initiative at UT Southwestern Medical Center.
Yesterday’s (1/6) Support Group Zoom call was very informative. Dr. Striley is conducting a survey of University of Florida students. It is the first such study ever involving ET and college students and HopeNET is helping to fund it. The preliminary findings are that this is a group that has been ignored for way too long.
We wanted to share with you our recent press release on an important Sage announcement regarding a global collaboration between Sage and Biogen related to SAGE-324. We are excited about this collaboration, as it aligns the efforts of two companies committed to patients and driven by a passion for brain health. https://www.businesswire.com/news/home/20201127005340/en/
Peter Muller, the founder of HopeNet was one of the first in the US to have Focused Ultrasound for his Essential Tremor. A study “Thalamic Tremor Following Focused Ultrasound Thalamotomy for the Treatment of Essential Tremor” has now been published exploring the results of the procedure on his tremor. You can find it here: Thalamic Tremor Following Focused Ultrasound Thalamotomy for the Treatment of Essential Tremor – Osterholt – – Movement Disorders Clinical Practice – Wiley Online Library
Cala Trio is an effective, easy-to-use, prescription therapy that reduces hand tremor. See if the therapy is right for you and utilize your Flexible Spending Account* (FSA) or Health Savings Account** (HSA) funds.
The end of the year is quickly approaching! If you have a FSA account, your healthcare flex spending dollars may expire at year end. Check with your individual plan for detailed information.
Get your prescription today! Download the Doctor Discussion Guide and talk to your doctor in person or by telehealth about Cala Trio.
Have you heard of the Cala Trio? If not, there’s lots to learn. Cala Trio is different than E-stim or TENS. Cala Trio is designed to deliver just enough bioelectric stimulation to reach the median and radial nerves under the wrist to penetrate and stimulate those nerves and interrupt the tremor cycle. This not like using a TENS unit where the goal may be to turn up the TENS stimulation as high as the patient can comfortably tolerate to relieve muscle pain. TENS has a local effect and pain immediately returns after therapy stops. Cala Trio provides stimulation calibrated to the patient’s individual tremor and provides meaningful tremor reduction on average for 96 minutes after therapy ends.
Their product link, www.calatrio.com has several patient testimonials and additional product information.
Doctor Discussion Guide.pdf This is a very helpful PDF that can be printed to use during conversations with your physician about Cala Trio.
Finally, The Cala Trio Customer Success phone number is 888-699-1009. Customer success specialists are available to answer any questions regarding this novel therapy Monday through Friday, 10AM to 7PM Eastern / 9AM to 6PM Central/ 8AM to 5PM Mountain / 7AM to 4PM Pacific. Their Success Team is dedicated to providing quality support as patients learn how to manage their hand tremor using Cala Trio.
If you have been formally diagnosed with essential tremor for at least three years, you may be eligible to participate in the KINETIC Trial.
The KINETIC Trial is looking for adults ages 18 to 80 years old who have been formally diagnosed with essential tremor for at least three years. The purpose of this study is to evaluate the safety and effectiveness of an investigational drug compared to placebo in reducing tremors. Participation in the KINETIC Trial lasts approximately 71 days, including seven clinic visits and five phone calls from your study team. Eligible participants may receive reasonable compensation for their time and travel.
To learn more about study participation and to see if you may be eligible, visit KineticTrial.com and talk to your doctor today.